Catching HOPE... MEckenzie has Sanfilippo Syndrome. Without a treatment, she will not live to adulthood.
Meckenzie is a social butterfly and is full of personality and giggles. Meckenzie's big brother Kyle treasures each and every day he has left with his sister.
Sanfilippo Syndrome is a devastating rare degenerative condition that robs children of a future.
You can help children like Meckenzie by funding pioneering gene therapy trials and helping to bring this technology to Australian shores. We are full of HOPE but need your help to "fund medical research so a cure can be found for children battling Sanfilippo today and those born with it tomorrow".