This project includes providing our representatives the resources required for developing, designing and publishing educational material for children with Alpha-1, to help understand the impact and lifestyle changes as they grow.
In Australia, it’s estimated that around 1 in 9 Australians carry a defective Alpha-1 Antitrypsin gene. Alpha-1 Antitrypsin Deficiency (AATD) can cause disease of the liver, lungs and skin. AATD can manifest as emphysema in adults as young as 30 years, sometimes younger and is a significant cause of liver transplants in children taking many years to diagnose.
Dedicated representatives at the Alpha-1 Association of Australia (AAA) are working endlessly to find ways to raise awareness and provide education for early diagnosis and treatment of AATD, supporting Australian families and their little ones.
The AAA needs your help
Every generous donation helps provide the AAA with the vital resources it needs to support families and their loved ones around the country, providing brighter, healthier and happier lives to all Australians affected.
Thank you for your wonderful support