Our projects include establishment and operation of an Australian AATD national research register, introducing newborn screening for early diagnosis, advocating for AATD augmentation therapy, along with ongoing patient support.?
In Australia, it’s estimated that around 1 in 9 Australians carry a defective Alpha-1 Antitrypsin gene. Alpha-1 Antitrypsin Deficiency (AATD) can cause disease of the liver, lungs and skin. AATD can manifest as emphysema in adults as young as 30 years, sometimes younger and is a significant cause of liver transplants in children.
AATD is often misdiagnosed as asthma or bronchitis for many years.
Dedicated representatives at the Alpha-1 Association of Australia (AAA) are working endlessly to find ways to raise awareness and provide education for early diagnosis and treatment of AATD, supporting Australian families and their loved ones.
The AAA needs your help
Every donation helps provide the AAA with the vital resources it needs to support families around the country and ultimately help find a cure for this devastating disease.
With your support, we can provide brighter, healthier and happier lives to all Australian families affected.
Thank you for your wonderful support