Alpha-1 Association of Australia

Alpha-1 Association of Australia

The Alpha-1 Association of Australia (AAA) was established to support families and those affected by or interested in Alpha-1 Antitrypsin Deficiency (AATD). AATD is a genetically inherited medical condition which can seriously affect the liver, lungs and skin.

AATD can manifest as emphysema in adults as young as 30 years, sometimes younger and is a significant cause of liver transplants in children.

AATD is under-recognised, taking an average of ~8 years between initial patient presentation and diagnosis. Yet it’s estimated that around 1 in 9 Australians carry a defective Alpha-1 Antitrypsin (AAT) gene. AATD is often misdiagnosed as asthma or bronchitis.

The AAA is an unfunded not for profit organisation partnering with professionals and other organisations to help raise awareness of and raise funding for a range of projects including:

* An Australian AATD national research registry;

* Inclusion of AATD in newborn screening for early diagnosis;

* Access to AATD augmentation therapy;

* General awareness raising events;

* Providing education and patient support.

All donations will help achieve our objectives.

 
 
 
 

 
 
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AUD $2

Alpha-1 Physician's Information Sheet

In Australia, it’s estimated that around 1 in 9 Australians carry a defective Alpha-1 Antitrypsin gene.  Alpha-1 Antitrypsin Deficiency (AATD)... Read More

AUD $5

Alpha-1 Branded Merchandise

In Australia, it’s estimated that around 1 in 9 Australians carry a defective Alpha-1 Antitrypsin gene.  Alpha-1 Antitrypsin Deficiency (AATD)... Read More

AUD $25

Alpha-1 Antitrypsin Deficiency

In Australia, it’s estimated that around 1 in 9 Australians carry a defective Alpha-1 Antitrypsin gene.  Alpha-1 Antitrypsin Deficiency (AATD)... Read More

AUD $25

Children With Alpha-1 Educational Materi...

In Australia, it’s estimated that around 1 in 9 Australians carry a defective Alpha-1 Antitrypsin gene.  Alpha-1 Antitrypsin Deficiency (AATD)... Read More

AUD $50

Newborn Screening For Alpha-1

Alpha-1 Antitrypsin Deficiency (AATD) is a significant cause of liver transplants in children and can take many years to diagnose. Dedicated repres... Read More

AUD $75

Alpha-1 Antitrypsin National Register

In Australia, it’s estimated that around 1 in 9 Australians carry a defective Alpha-1 Antitrypsin gene.  Alpha-1 Antitrypsin Deficiency (AATD)... Read More