MJD Foundation Inc

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MJD Foundation Inc

What is MJD?

Machado Joseph Disease is an hereditary neuro degenerative condition. It is in a ‘family’ of neurodegenerative diseases that includes Huntington’s Disease.

The faulty gene causes muscular weakness and progresses over time to a total lack of voluntary control and very significant permanent physical disability.

MJD is an inherited, autosomal dominant disorder, meaning that each child of a person who carries the defective gene has a 50% chance of developing the disease. In addition the mutation is typically expanded when it is passed to the next generation (known as an ‘anticipation effect) this means that symptoms of the disease appear around 8-10 years earlier and are more severe.

There is no known cure for MJD.

Who is the MJD Foundation?

The MJD Foundation is a charity, established in 2008

We are providing practical solutions in Arnhem Land around:

· Education/Training

· Research

· Equipment/Support

· Services

 
 
 
 

 
 
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Donation of $25 towards Research

Donation of $25 towards Research - $25

 

Your valuable donation will enable us to do more this year for the Indigenous Australian sufferers of MJD.

We want to commence a new research project to help with Speech and Swallowing problems that Machado Joseph Disease sufferers experience. Y...

Donation of $50 towards Education

Donation of $50 towards Education - $50

 

Your valuable donation will go towards enabling us to provide books translated into local languages such as Anindilyakwa so that sufferers of Machado Joseph Disease can gain a better understanding of the disease.

Donation of $50 towards a Day Out

Donation of $50 towards a Day Out - $50

 

Sufferers of Machado Joseph Disease become severley disabled within 5-10 years of first symptoms, and due to their sleep issues, both they and their primary carers (usually a family member) are tired, and lack the ability to enjoy the usual activi...

Donation of $100 towards Equipment

Donation of $100 towards Equipment - $100

 

We are currently working on providing each sufferer of MJD either medical or mobility equipment to improve the quality of their life. We are hoping to be able to buy new beds, ramps, disability equipment, walkers, recliners etc.

Donation of $200 towards Services

Donation of $200 towards Services - $200

 

Your generous donation in this area would be so valuable in allowing us to provide improved services around care and transport in the remote area of North East Arnhemland. There are a significant number of new projects that we would like to comme...