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Cystic Fibrosis Victoria
Cystic Fibrosis Victoria Inc {CFV} was established in 1974 by a group of parents of children with Cystic Fibrosis (CF) who felt the need to form a support group. The organisation is now the ONLY provider of support services across Victoria for over 750 children, young people and adults with CF, and their families.
About CF:
• CF is the most common life threatening genetic illness effecting young Australians today.
• One in 25 Australians is an unaware healthy carrier of the CF gene
• A baby is born with CF every four days in Australia and almost all of the parents had no prior knowledge of their carrier status.
• A person with CF undergoes constant medical treatments and hospitalization.
• Treatment is relentless, day-in day-out with physiotherapy, enzymes, supplements, salt, vitamins, antibiotics and aerosol inhalers. CF primarily affects the lungs and digestive system.
• About half of sufferers live until their mid to late 30s, but still too many die young and as yet there is no cu
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